Trust in the LORD with all your heart and lean not on your own understanding....
Proverbs 3:5
Camden doing well with oxygen collar. His stats were a bit low for a few minutes after the RT put it on, then they went back up. This evening I watched his trach get changed and the site get cleaned. I learned a lot and watching her answered some questions I had. Camden's primary night nurse, Kim, is on every weekend and has been great with teaching me and answering all my questions too. I am feeling more confident. She quickly bathed him ( he gets stinky, and the trach site does NOT help the situation! ) and then we had lots of snuggle time.
He is back up to 9 lb 15 oz.....highest he has ever been and the weight he was before the trach surgery. They are only weighing twice a week now, so we will see if he gained on Sunday. :)
About Me
- DevonLeah
- Camden James joined our family on January 22, 2009, weighing approx 8-9 pounds and measuring around 22 inches with an UNKNOWN congenital diaphragmatic hernia. He joins his father, Marcus and I and three brothers and a sister.He has a trach and has been off ventilator since winter of 09. He gets all nutrition from a gtube.Life is not what it was, but we are adjusting to our new normal and trusting God as He continues to guide.... *Camden had his first "reherniation" diaphragm repair on Oct 30 2009, patched with gortex.* Some colon had made its way in chest cavity, behind his heart.*He was hospitalized due to his first sickness resulting from a cold(we think) for the first time on Jan 6 2010, at almost one year old.*REASONS FOR BLOGGING? Obviously to keep close friends and family updated but more importantly to help others with special needs children. Other blogs encourage me, give tips, and help me realize that I am not alone on this journey.I hope to do the same for them.*Camden was decannulated on June 2, 2010!!!*UPDATE for 2011 He finally took interest in eating, but it isnt possible due to his nissen surgery being too tight. New hurdle to overcome..
I dreamed Camden was home last night! It was right after I dreamed I had pencil sharpener duty at school and we were recycling sharpie markers ..hhhmmm now what did I snack on :~) Camden was all smiley & cozy in his crib. That seems to be his trademark. Smiling. Now if he can smile all the time with all he has been through in his almost 3 month journey, what do we have to complain about? I am so excited and thankful to our God who seems to be heading Camden towards Cannes street in the not-too-distant future. Awesome, even if he detoured in Argentina ( Thanks Julie for that sweet reminder ) The sights have been beautiful and we have learned so much. We have witnessed God's amazing love & grace in ways we could never have dreamed. Yes, it has been so difficult and even crushing at times to see this little one suffer. I am, however assured by the fact that God is in control. Some of the mysteries we will not figure out on this side of glory~
ReplyDeleteLove from Nana who can can't wait to hold Camden this week!!!!
P.S. Devon, Camden now weighs about what you did at birth.9.6 lbs. So, to me he is just a tiny litte newborn :~)