Congenital Diaphragmatic Hernia Awareness Day!

Lots to say, just preparing ya! Busy day...

March 31st is CHD awareness day. I ordered some bracelets and ribbons and proudly passed them out at the hospital today. =) I bought Marcus and I t-shirts that say mommy and daddy with the turquoise ribbons.

A lot went down today. The ENT doc came in and changed Camden's trach out for the first time. So, this was the first time Marcus and I got to see it. It was shocking for the first few seconds to see that hole in my baby's throat, but I was fine! He gave us an earful in 1o minutes, then bronched Camden again and said the broncomalasia looks better. My husband finally asked him to give us a percentage of just how much better. ( I thought that was a great ?) The ENT said it was 50 % better!! That took me by surprise and I was just so thankful to God! Then they took him completing from 5 to OFF on the pressure support, so he is now strictly on CPAP pressure. Tomorrow they will give him windows off everything to see how he does. Completely off the vent. Yes, it is moving too fast for me!! One doctor wants him sent home on vent, others do not. We just aren't sure what Camden will do as of yet, but either way he is coming home soon..... on or off the vent! I finally asked one physician when they are thinking of kicking us out. She said it will be a maximum of one month, but they are hoping to cut it shorter than that. (Um, I need to get things ready!) It is now all about Marcus and I being totally comfortable in the trach/emergency care. We have learned a lot already, taking turns hanging out at the hospital doing Camden's care. If he goes home without the vent we will have to stay two nights at the hospital and do all the care before going home. If he goes home ON the vent, we'll have to stay longer. So we will know more in a few weeks.

He is also getting his tongue clipped ( he was tongue tied too ) and will be starting speech therapy. They are all very concerned about him learning to suck and want to eat and want to get that ball rolling.

Oh, and I gave him a bath today for the first time. He pitched a fit, but Im okay with it now because I can pick him right up and comfort him. Then he smiles. Little stinker!
He loves his bouncy seat and wasn't over stimulated with the music and vibration. He is tolerating things so well. Still not sucking paci, but we still work on it. We also give him dum dum lollipops to taste. LOL ( yes, good thing they do not contain hydrogenated oils, and even the nurses pick on me about it - now you quit laughing, Gentges ;p) They actually put in an order for that. ;) They were out, so I went to walmart and got some, but all they had was huge bags and I am now stuck with 300 dum dums.

I think that is all for now....