My little fighter!

Ofcourse this should be dated March 12, but I had a late night at the hospital.

Today was one of those eventful, pit in my stomach days....
They extubated and he did so well on cpap!! I was so proud. :) They gave him 14 minutes on it, he kept his stats up, but he struggled really hard. They said it was heartbreaking. ( I chose to pass this time, as last time was very difficult for me to watch him gasping for air ) He did better than we thought, and they even heard a faint sound from him. ( Now I would've loved to hear that ) He was totally exhausted. Slept all day and when he would start to wake up he would throw fits. I watched his stats drop a few times too many today and seeing him struggle to breathe is just pitiful!!
So, the decision is to trach. We can now begin to get on with his little life.....get him up and slowly moving around instead of laying flat. Surgery date hasn't been set, but I'm hoping they will wait until next week sometime. He will also get a g-tube ( feeding tube that goes straight to stomach) and another surgery to help with his reflux. They will go ahead and get it all done at one time. I hate to see him have to be put under ...... but this is all part of this rollercoaster ride they told me I would be on.
So a lot accomplished today!

still getting 82 mls of breastmilk (slowly through feeding tube )and has good days and bad days with the reflux. Actually did well with it today of all days!