Surgery date will be decided tomorrow....I hope. That is the latest. Both surgeons are not able to get together until the week after next, but the ENT is available to do the trach twice this week, so it is either trach this week, do the g tube and Nissan surgery later, or do it all at once later in the next few weeks. I will find out soon...
As for Camden, he threw a fit on his momma 10 minutes after I got there. I keep saying I can't handle another fit, but I seem do be doing it. ;) Ofcourse he is recovering much better, and his stats only dropped down to 60, but the memories keep coming back and I keep thinking as I am breaking out in hives, ( those that know me well, know my perma -hives ) "Oh, pleeease not this again!"
He is staying awake a lot during the day, and is getting bored from just laying there! (Guess I'd be pitching a fit too) He loves to be talked to, loves to hear us sing, ( even my mom's songs ;p) and I am slowly introducing him to toys. Today he met the famous fish aquarium crib toy. He was okay with it and even smiled. He has to be in a certain mood, or he gets over stimulated. All in time.....
About Me
- DevonLeah
- Camden James joined our family on January 22, 2009, weighing approx 8-9 pounds and measuring around 22 inches with an UNKNOWN congenital diaphragmatic hernia. He joins his father, Marcus and I and three brothers and a sister.He has a trach and has been off ventilator since winter of 09. He gets all nutrition from a gtube.Life is not what it was, but we are adjusting to our new normal and trusting God as He continues to guide.... *Camden had his first "reherniation" diaphragm repair on Oct 30 2009, patched with gortex.* Some colon had made its way in chest cavity, behind his heart.*He was hospitalized due to his first sickness resulting from a cold(we think) for the first time on Jan 6 2010, at almost one year old.*REASONS FOR BLOGGING? Obviously to keep close friends and family updated but more importantly to help others with special needs children. Other blogs encourage me, give tips, and help me realize that I am not alone on this journey.I hope to do the same for them.*Camden was decannulated on June 2, 2010!!!*UPDATE for 2011 He finally took interest in eating, but it isnt possible due to his nissen surgery being too tight. New hurdle to overcome..
Correction...hhhmmm Camden LOVES his Nana's singing. He tells me so with those beautiful blue eyes twinkling! I hated leaving him yesterday. I can sit there and look at him for hours. He is so sweet and his smiles are priceless! He is stretching my faith and my mind. I never heard of Bronchiomalacia before Camden! Thank you for the faithful prayers of you blog followers. We know the righteous prayers of you all avail much!!!God is so good!! Love & Blessings!!!
ReplyDeleteDevon,
ReplyDeleteI know you can handle whatever you have to. Come on... look at what you did for me a few years back, remember? Only a wonderful friend could do that!!! ha
I can't wait to see Camden join the rest of the Roell crew running around the house. We're praying for the doctors timing to be perfect and for Camden to continue to amaze them.
And yes Momma Susie, I'm sure Camden LOVES your singing!!! hee hee
Love you guys!
Hey Dev!! Every time I try to post a comment I get booted or something. I hope this one goes through.
ReplyDeleteYour precious Camden is so beautiful! I remember the days in the NICU like they were yesterday, I know what you mean about tha one nurse. The others were great but there is always that one!
Robbie had a G-tube with Nissan placement. I don't know what they have told you about it but if you want to know let me know. Angela's little one also had a nissan without a g-tube.
I love ya girl! Im praying and praying and praying!
Hugs,
Renee