A little vent free time?

Appointment went okay other than Camden pitching a fit. He has done so well at the doc apps, then after Thursday's experience he is officially over them and lets us know. ( that is another story, but he saw a develp. doc on Thurs and he was ringing bells in Camden's ears and after that he was a grouch the rest of the visit ) Anyhow, today was the pulmonologist and we did a trial run for 25 minutes off the vent and Camden did excellent! ( after his fit ) We are now going to take him off the vent twice a day for 30 minutes each time. Not much, but it is a start! They didn't lower the vent settings. There was an area of concern on his good lung right before he was discharged from the hospital so the pulmonologist was concerned. The RT is going to come here a week before his next appointment and lower the vent settings, then at the next app they will xray him to see how his lung responded to the lower settings.

In the meantime, when I can take him off the vent for that little time, I feel like a free bird. I did it this evening for a few minutes and the kids were so excited you would have thought I brought another new baby home. ;) "Can I hold him without his tubes?" were the questions from Micah and Peanut.

We are also having to pack up and leave for a couple weeks while Marcus is here doing the floors. (Thankfully the insurance company thought it was needed!) He is also going to do some other much needed house improvements while we are out. We are also hoping to get a new drain field so this doesnt happen again! Lots to do to get things up and off the floor and to get nursing care and other things in order to move Camden.

Once again, the early hour blogging is because my night nurse called in last night. Mom is here and actually took the first shift so I could get a nap in.