CRAWLING!!!! =) I love getting into things! My family is WAY excited today, and my OT is going to be shocked when she comes Thursday. =)
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About Me
- DevonLeah
- Camden James joined our family on January 22, 2009, weighing approx 8-9 pounds and measuring around 22 inches with an UNKNOWN congenital diaphragmatic hernia. He joins his father, Marcus and I and three brothers and a sister.He has a trach and has been off ventilator since winter of 09. He gets all nutrition from a gtube.Life is not what it was, but we are adjusting to our new normal and trusting God as He continues to guide.... *Camden had his first "reherniation" diaphragm repair on Oct 30 2009, patched with gortex.* Some colon had made its way in chest cavity, behind his heart.*He was hospitalized due to his first sickness resulting from a cold(we think) for the first time on Jan 6 2010, at almost one year old.*REASONS FOR BLOGGING? Obviously to keep close friends and family updated but more importantly to help others with special needs children. Other blogs encourage me, give tips, and help me realize that I am not alone on this journey.I hope to do the same for them.*Camden was decannulated on June 2, 2010!!!*UPDATE for 2011 He finally took interest in eating, but it isnt possible due to his nissen surgery being too tight. New hurdle to overcome..
That is so great that he is crawling!! Way to go!!
ReplyDeleteThe thing at the foot of Maggies bed is an oxygen concentrator. It looks like you have the big tank. That is what we had before we found out how much oxygen Maggie would be needing off and on. Now we own it!! The joys of a medically fragile baby! Eventually we will own everything. We aren't far from that. Maybe just one more thing we are paying on.
Way to go Camden! let the fun begin!
ReplyDeleteCamden, you are so awesome. God is just working it on out with you. You have such a story to tell the world. As I said earlier today, when you begin to talk I am going to listen to every word, because it will come straight from the mouth of our Lord and Savior Jesus Christ. He has been whispering in your ears for months and when He gives the go ahead and it will be soon - oh what a good message you will give us........
ReplyDeleteLuv ya,
Oh boy!!!! Crawling.... tear it up Camden! God always shows Himself strong through what you 'shouldn't or couldn't'do! I love it and praise Him for the excitement you provide for your family ;) I miss oyu buddy and will see you in 8 sleeps !! Nana xxxooo hugs & kisses to you sibling nurses!
ReplyDeleteya go camden!!!! thats wonderful news!!!
ReplyDeletei love you buddy!