ENT appointment, and bottle time

The very excited news is that Camden did awesome with his bottle last night. This was totally unexpected! First I tried a spoon with cereal and he completely freaked on me, slapped the spoon, and cried. I almost didnt even try the bottle after that! PLus, I just knew the hospital stay/being sick was going to be a major set back in the eating department. I decided to give him the bottle anyway and I actually saw the liquid slowly but surely, moving towards the nipple. He was drinking it!! 25 minutes later ( he was quite over sucking at this point) I checked the bottle and an ounce was gone! I had praised him while he was sucking, and he is huge on impressing and showing off right now. =) He never gagged once. With oral aversion, you never know, but I am hoping this is the beginning of something. It is still small compared to the big picture, but such a huge step.

ENT today: Camden is getting a larger trach. His airways are inflamed, to be expected, and Im sure being sick was a set back. He still has fluid in his ears and the dr said next time if the fluid is still there, he is getting tubes in his ears. =( Always something, Camden! My poor babe. He was a super grouch too. He is so over the poking. I was a bit bummed about the larger trach. I know he is growing and needing it, it just felt like we were going in the opposite direction. Like he is no longer going to be a "trach baby" but a "trach kid". I never wanted him to be a "trach kid" ;( I am just feeling it wont be leaving as soon as I thought but Camden needs to grow more and get stronger and Im thinking with surgeries the trach isnt the worst thing during this season of his life. It is weird.

Speaking of growing, he is 18.14. Surprisingly through his crazy fast breathing and fever he gained, so that is telling me that I am maybe adding too many calories. I am going to give it another week and see if I need to cut back. I may have already shared this in my last post....cant remember.

God bless!