After upper GIs, xrays, ( we went again the other day and all is fine) I have come to realize that Camden just can't tolerate his feeds. Yes, he has allergies too, and there may be some I havent recognized yet, but after a rotation diet he is still wretching. We are back on the pump and still using 60 ml syringes ( taking 20 min breaks in between each)but I am now feeding him over 45 minutes on an average. It is helping, a lot. He did have one bad episode today, but we found it was because he was laying on the bed flat and being tickled. BROTHERS! =0) Anyway, it is helping so that is what we have to do. I am not understanding how we worked for so long to get his feeds through faster, and not we are back to this?? I just knew as he got older things would get better. It worries me about his future with eating, especially when he is still not taking any calories by mouth. Trying not to get discouraged and just focusing on how well he is doing over all!
A cough has settled in his chest from the cold he got a week and a half ago, but the wheezing is leaving and he is doing ok. =0)
He is also finally gaining weight. I have been using different things, and substituting sunflower butter, honey, and garbanzo flour in his rotation diet and it is slowly bulking him up more.
Above is a pic from today...sorry about the quality. Mom's camera was on the wrong setting. ;p
Happy bday to my 14 yr old, Justin and my 6 yr old daughter, Micah!
Glad to know that Camden is doing well. Walking up stairs and getting into things. So awesome.... I am still believing that he will eat by mouth, but you know all things are in God's timing. He keeps His promises.....
ReplyDeleteHappy Birthday, Justin and Michah!!!
Love to all
I miss you.
ReplyDeleteYou truly are a blessing to others.
ReplyDelete