We have decided to move to Madison County, Fl. 2 hours away. Will will still drive here to Jacksonville for Camden's doctors, of course. Things have just happened so fast and easily and we will be moving Oct 1! Glad to be in the country and near my parents! Lots to do with medical supplies and such, but nothing compared to vent days, so no complaints.
PT came again and agrees that he is taking off. We are not going to bother to get another PT when we move, but just do an evaluation in 3 mths. No OT either, but of course we will need to find speech out there.
We believe SOY IS the issue. Has done soooo much better with rice, but has lacked all the extra calories/protein that was in the bright beg. formula so we are starting a new blended diet with flax, molasses, olive oil, wheat germ, and a few more yum yums. Good thing he cant taste it, huh? ;o) The base will be hemp milk...
He was in the 3rd % in weight and 31st in height at the nutritionists yesterday. Skinny thing! Hoping this new diet will fatten him up!
Will be busy and packing for the next few weeks, so until then...
MOST IMPORTANTLY...
My heart is heavy for the Agnew family, a fellow blogger that I have never met, but have been reading about their precious baby girl, Maggie. I started following her blog back when Camden was trached. She is extremely sick and they found out she has a mitochondrial disease a while back. Please keep her in your prayers....
Also all the families hurting from lost loved ones from 9-11....
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Devon,
ReplyDeleteWe will miss you guys a whole lot. Stephen wants to know if the boys can stay behind. Of course he knows they can't but it doesn't hurt to have wishful thinking. I will definitely have to keep up with the blog now. This is a great move for your family. Keep in touch with us and let us know how all is going. We will definitely stop by if we are driving through GA. I won't say goodbye but see you soon.