Camden has been doing a lot this June...
He will be 18 months on the 22nd!
First praise is that since the day his trach was removed, he has NOT needed any oxygen!
He has been to the beach twice since trach removal, and loves it. Has no fear of the water. Also signs "water" when he sees pools and gets excited to take a swim with daddy.
We are still cruising, but working on getting the courage to walk. I am thinking it is just a few weeks away and he will be walking.
No new words, still just says "momma". When you bug him to say anything else he says "momma". He does "hum" "uh oh"..
He is signing approximately 15 -20 words. He also signs "dog" for every animal. The gorilla at the zoo was a dog, and so were the birds at the beach. Oh, and while reading Noah's ark, all those animals were dogs too.
He is still hanging at 21 pounds which has put him in down in the 3rd percentile for weight (30th in height) so we have increased his feeds. He is now getting 4 syringe feeds of 195 mls each ( still blenderized diet of fruits, veggies, and meats) and is tolerating them wonderfully!! The milk free diet was definitely the key!! He is still getting a night feed on the feeding pump, but we have cut back on that. My goal is to cut that out completely and add that to the day feeds as he continues to tolerate more food at once.
As you know he is now licking, and now wants to try everything we eat, depending on his mood. If he is in a bad mood, food makes him even more angry, but most of the time he wants to lick.
He will actually open his mouth and almost bite my finger off for spaghetti sauce.
He will now sip sweet tea out of a cup. Yea!!! Still no official calories by mouth but I am thanking the Lord for licks, sips, and tastes.
Has 6 teeth all the way in and at the moment he has cherry red gums and is cutting like 6 more, poor thing.
Still wearing his "ThudGuard" toddler helmet with the over paranoid mom. I am thinking after he has been walking for a month I may let it go? = o)
Still getting occupational therapy once a week, pulmonolgist around every 6 weeks, nutritionist around every 6 weeks, surgeon every few mths. We have a follow up with ENT July 1st, then not sure when we'll have to go back. We do not have to see the cardiologist for 1 whole year. Our next step in to look into an intense feeding clinic.
This has been an exciting month for the Roells! =)
He will be 18 months on the 22nd!
First praise is that since the day his trach was removed, he has NOT needed any oxygen!
He has been to the beach twice since trach removal, and loves it. Has no fear of the water. Also signs "water" when he sees pools and gets excited to take a swim with daddy.
We are still cruising, but working on getting the courage to walk. I am thinking it is just a few weeks away and he will be walking.
No new words, still just says "momma". When you bug him to say anything else he says "momma". He does "hum" "uh oh"..
He is signing approximately 15 -20 words. He also signs "dog" for every animal. The gorilla at the zoo was a dog, and so were the birds at the beach. Oh, and while reading Noah's ark, all those animals were dogs too.
He is still hanging at 21 pounds which has put him in down in the 3rd percentile for weight (30th in height) so we have increased his feeds. He is now getting 4 syringe feeds of 195 mls each ( still blenderized diet of fruits, veggies, and meats) and is tolerating them wonderfully!! The milk free diet was definitely the key!! He is still getting a night feed on the feeding pump, but we have cut back on that. My goal is to cut that out completely and add that to the day feeds as he continues to tolerate more food at once.
As you know he is now licking, and now wants to try everything we eat, depending on his mood. If he is in a bad mood, food makes him even more angry, but most of the time he wants to lick.
He will actually open his mouth and almost bite my finger off for spaghetti sauce.
He will now sip sweet tea out of a cup. Yea!!! Still no official calories by mouth but I am thanking the Lord for licks, sips, and tastes.
Has 6 teeth all the way in and at the moment he has cherry red gums and is cutting like 6 more, poor thing.
Still wearing his "ThudGuard" toddler helmet with the over paranoid mom. I am thinking after he has been walking for a month I may let it go? = o)
Still getting occupational therapy once a week, pulmonolgist around every 6 weeks, nutritionist around every 6 weeks, surgeon every few mths. We have a follow up with ENT July 1st, then not sure when we'll have to go back. We do not have to see the cardiologist for 1 whole year. Our next step in to look into an intense feeding clinic.
This has been an exciting month for the Roells! =)
Wow Camden, you are really making great strides. Next removal will be the feeding tube. Keep, licking and tasting, you will be eating before you know it. Can't wait until you take your first steps. It will be soon........
ReplyDeleteand may I add:) Camden knows what the spoon and fork are for! He tries to poke everything on anyones plate. Of course this includes your drink! I love it!!! He loves babies and even signed 'baby' when I told him there were babies at the table behind us. He then, would strain to turn himself around and sign baby. Did his Nana, mention how smart he is? Oh, by the way Dev, quit rushing him he will only be 17 months on the 22ND :) he is quite advanced so I can see how you meade the error~praise the name of Jesus,
ReplyDelete~his so so proud and infatuated Nana.
Movin right along!!! YAY!!!!
ReplyDelete