Monday, September 30, 2013

Same Old Butterflies...

The date is set for Camden's trach hole closure. Oct 30th at WCH with Dr Maddern. He has had a nice, hospital free, long summer but we are ready to get this done. Every time surgery is officially on the calendar, the random butterflies start then get stronger until the day of surgery. This is a minor surgery in comparison to what little man has been through, but it is still hard to know he has to go under again. He will go to the PICU to be monitored, then to a room. 1 night stay (oh thank God how I dread when we have to stay longer!) then home we will go. He will have to have little drain tubes for a few days as well, so we may have a couple more trips to Jax. I know he will fly through it. There are a lot of emotions for me when I think about this surgery. It feels as though I was just in a room with him on a ventilator wondering if he would ever breathe on his own. Here we are, almost 5 years later, and he is getting his trach hole closed. He did it. He breathed on his own and now that part of his journey is over. Still takes my breath away sometimes. We are so very blessed. He sure is going to look funny with out that little hole in his neck!

9 comments:

  1. Leah....
    October 30th.... I will be praying for Camden.... And you!! ;)
    I understand your butterflies. Trust me. I do!! See, I have been entrusted to a surgeon four times in my life, so I've got almost a childlike faith in their skills. When it involves me!! However. I recall last December, when Mom underwent an operation. I was so edgy and nervous, I wrote my entire day away!! So yeah. I get your butterflies. You love Camden so very much.... ;)
    "There are a lot of emotions for me when I think about this surgery. It feels as though I was just in a room with him on a ventilator wondering if he would ever breathe on his own. Here we are, almost 5 years later, and he is getting his trach hole closed. He did it. He breathed on his own and now that part of his journey is over. Still takes my breath away sometimes. We are so very blessed.". This touched my deepest, most heartfelt emotions!! ;)
    --Raelyn

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  2. Will be praying for you and the little guy on October 30 and the days leading up to the day.

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  3. DEVONLEAH....
    October 30th. That means twain things. One. Camden should be having his trach hole closure done today. I hope everything goes as planned for that!! Keep us all updated, please!! And two. It has been one month since you last posted on this Blog!! ;)
    --Raelyn

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  4. DEVONLEAH....
    Happy Halloween!! ;-O
    --Raelyn

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  5. DEVONLEAH, Camden James and family....
    Happy Thanksgiving, Friends!! ;)
    --Raelyn

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  6. DEVONLEAH....
    I have been a stranger in these parts.... We got busy, busy, busy and I disappeared for a while!! It feels so good to back!! ;)
    You have not posted on this Blog in well over two months!! I am missing Camden James, my Kindred Spirit CDH Buddy!! I hope that everyone is so well and healthy over there that life feels boring!! ;-D
    --Raelyn




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  7. DEVONLEAH, Camden James, and family....
    Just stopping by to wish you a Merry Christmas!! ;)
    --Raelyn

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  8. DEVONLEAH....
    It has been over three months since you last posted on this Blog!! I am missing Camden James, my Kindred Spirit CDH Friend!! I hope your Christmas was Merry and happy!! ;-D
    I will "see" you next year, Friend!! ;)
    --Raelyn

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  9. I just posted a fictional children's story about this character who was born with CDH on my Blog, "Minuscule is good!". { http://writing--projects.blogspot.com/ } Check it out if you would like!! And maybe leave a comment so I know you visited? Raising CDH awareness with something I can do.... Writing!! I hope you enjoy it!! ;)
    --Raelyn

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