Camden is scheduled for surgery next Friday to have his nissen re done. (The nissen is the top of the stomach wrapped around the bottom of his esophagus- the one he has now is too tight) This will involve opening him up for the third time, throught the same scar. Food can not make it to his stomach so if he is going to eat by mouth one day, it seems to be our only option.
For my friends who want more details:
We looked at his esophagram with Dr K today and it looks like a normal esophagus until right above the nissen it sort of "bells" out. That seems to be where food is hanging out and is getting stuck, and then not even making it through the nissen. This will be his third nissen related surgery. First one too loose, second is (obviously) too tight...( so this upcoming one should be juuuust right....?)
I also had concerns about his Mini One button. It has seemed for a while now to look as if it was being pulled up inside him. Well, it popped out other day and the balloon looked crazy. The last one looked crazy but this was way worse. Most seem to think it is a bad balloon, but I dont know. Did i actually get 2 bad buttons that were ordered mths apart? Seems odd to me...but IDK.
plus how it looks like it is being pulled is strange. It was actually FLATTER on the left side when it first fell out. We gave Barney gtube surgery and I took it out to take this picture. It was actually trying ot go back to a balloon shape here. Anyway Im not worrying about it since he is having surgery Friday.
* Testicles and closing trach hole are being put on the back burner, once again. It was nice for while to be able to think about tackling them, the "smaller" surgeries, but once again greater problems have arose.
I am not RUSHING his eating. I am not anxious to get that tube out. This kid used to dry heave at the sight of food or over things in his mouth, and now, 2 yrs later he is wanting and ASKING for food and I have to tell him no. I feel we are going to miss our window of opportunity. he is confused. I am worried about his poor esophagus and I am dreading this surgery. I just pray this is the 'fixer'....
For my friends who want more details:
We looked at his esophagram with Dr K today and it looks like a normal esophagus until right above the nissen it sort of "bells" out. That seems to be where food is hanging out and is getting stuck, and then not even making it through the nissen. This will be his third nissen related surgery. First one too loose, second is (obviously) too tight...( so this upcoming one should be juuuust right....?)
I also had concerns about his Mini One button. It has seemed for a while now to look as if it was being pulled up inside him. Well, it popped out other day and the balloon looked crazy. The last one looked crazy but this was way worse. Most seem to think it is a bad balloon, but I dont know. Did i actually get 2 bad buttons that were ordered mths apart? Seems odd to me...but IDK.
plus how it looks like it is being pulled is strange. It was actually FLATTER on the left side when it first fell out. We gave Barney gtube surgery and I took it out to take this picture. It was actually trying ot go back to a balloon shape here. Anyway Im not worrying about it since he is having surgery Friday. * Testicles and closing trach hole are being put on the back burner, once again. It was nice for while to be able to think about tackling them, the "smaller" surgeries, but once again greater problems have arose.
I am not RUSHING his eating. I am not anxious to get that tube out. This kid used to dry heave at the sight of food or over things in his mouth, and now, 2 yrs later he is wanting and ASKING for food and I have to tell him no. I feel we are going to miss our window of opportunity. he is confused. I am worried about his poor esophagus and I am dreading this surgery. I just pray this is the 'fixer'....
Oh wow...did that hurt when it came out??????
ReplyDeleteAww..I'll be praying too, Dev!
Many, many prayers that this will fix everything with regard to eating! Is Dr. Kays doing the surgery? I will be praying on Friday for a smooth surgery and recovery! I know you will be so glad when it's all over with! Poor little guy!
ReplyDeleteHugs,
Jennifer