Happy 2014

It's going to be a good one. :) Camden's Trach hole closure went well and is healing up nicely! He turned 5 on the 22nd! He was so excited about his birthday and was counting down the "sleeps." He is such a big boy. We are working on learning to read right now. He loves to sing and do his 100 piece puzzles. He EATS so much and loves trying new things as well. Finally gained a pound and is a whopping 31 pounds. ;) He has also stayed healthy all winter long which we are so thankful for. Other than the ENT post up check ups, we have stayed pretty much appointment free. It's been lovely. :) Enjoying him each and everyday. Love my Camden James. thank you, Lord.....

Same Old Butterflies...

The date is set for Camden's trach hole closure. Oct 30th at WCH with Dr Maddern. He has had a nice, hospital free, long summer but we are ready to get this done. Every time surgery is officially on the calendar, the random butterflies start then get stronger until the day of surgery. This is a minor surgery in comparison to what little man has been through, but it is still hard to know he has to go under again. He will go to the PICU to be monitored, then to a room. 1 night stay (oh thank God how I dread when we have to stay longer!) then home we will go. He will have to have little drain tubes for a few days as well, so we may have a couple more trips to Jax. I know he will fly through it. There are a lot of emotions for me when I think about this surgery. It feels as though I was just in a room with him on a ventilator wondering if he would ever breathe on his own. Here we are, almost 5 years later, and he is getting his trach hole closed. He did it. He breathed on his own and now that part of his journey is over. Still takes my breath away sometimes. We are so very blessed. He sure is going to look funny with out that little hole in his neck!

Doing well!

I was having concerns about Camden maybe reherniating so I took him to gville today for an X-ray. We were almost due to see Dr Kay's anyhow. X-ray was clear, I was wrong, very thankful! He has lost two pounds (down to 29) since gtube was taken out, so I am going to try to work harder on his diet. Tonight he ate a whole "abacoda." ;-)  He loves avocados!

We will go see ENT towards the end if September to schedule Trach closure. I didn't want him to have restrictions with swimming through the summer, so I have put it off. We did teach him to swim, but he is far from a strong swimmer, but we have had a lot of practice! With time he'll get there!

I can't believe my baby is a little over 4.5! Time seems to go by way too fast. Trying to enjoy him as much as possible without worry. So hard not to think about the what ifs at times, but I'm doing better. ;-)
thanks for caring for my boy. <3 p="">

A break.

It has been just that. =) A break for my little man. He has done amazing in the eating departnment. No gaining, but maintaining. Tall and exremely skinny. ;oP We are putting off trach closure. After his last surgery on his private area, I decided we were going to stay hospital free as long as possible! He has done well since then. He did get a tummy virus and had a few gagging episodes. Ever since then he has had a slight cough which I think is related to reflux so I am going to watch him and maybe think about getting him back on the reflux meds. Other than that he is well and I am thankful and just enjoy this blessing daily. I never take him for granted. Thank you, Lord....
Here is a recent picture with his new puppy, Scout!

Feeding tube is officially GONE!

yes. A little over a week ago. It happened extremely fast for me. We went to see Dr Kays for a few month post op check up and I told him how well Camden has been eating and that although emotionally I was ready for the gtube to come out, I knew he wasn't going to ever need it again. So, we took it out! Camden did very well with it. I thought he was going to have a hard time dealing with this piece of plastic that has been "on" him for almost 4 years all of a sudden missing. He asked for it for a few days. A couple of times wanted to try and be mean and say, "Im not hungry! I want my tube back in!" (BTW- he is so stinkin' funny and cute when he tries to be mean and it lasts for all of 2 minutes) (What is bothering him is the granulation tissue that is left form the tube. he says he wants the dr to "cut it off" so we will deal with that later down the road.) Now, me on the other hand...I would well up with tears here and there through out the following days! This tube that his life has depended on for so long is gone. While I was so thankful for his progress, it just seemed so strange. He has only been truly able to eat by mouth for about 4 months and I was just adjusting to that. Then it was the cleaning out of med supplies (throwing away all his used equipment, and donating all the new) really hit me. I haven't known anything but Camden with medical supplies. He only has O2 equipment now, as needed. WOW. I am now adjusting (like this blog is all about me lol) and am so very proud of my little man. He tries everything and looks forward to eating. No more crying over food, he fought through the aversions. No more gagging, choking, retching....we finally know what was causing the issues it is fixed. (thank you, Dr K!)

It has been a long, emotional 4 year feeding journey to get him here, and we did it. He did it....

Thanksgiving was amazing. He enjoyed a plate of Thanksgiving meal for the first time and wanted to know what everything was with a huge smile on his face!

Next surgery is Jan 3 for trach hole closure and he's getting the "boys" brought down where they need to be. After that he will be 4 on the 22nd and we are praying for a calm, hospital free year!! Now, that would be nice! =o)

Thank you, Jesus.....

Cardiologist follow up in .... ONE year?!

Yep. =o) Heart cath went great. Camden recovered from anesthesia for several hours afterwards then was walking around as if nothing happened. He said, " I'm fine, momma!" 
We did find out the his pulmonary hypertension is mild. I am ok with that and was just thanking God is wasn't severe!

The odd part, (but good) was that the PDA was too small and insignificant to repair! Dr said he could have tried if I wanted him to but said it wasn't worth it, so I let it be his call. He is 100% positive it isn't causing any problems, and I trust him. He said he will see us back in one year! 

This time getting him put under was awful. The Versed wasn't working and he wanted me to take him back to the OR. He fought and fought and we all had to hold him down to be put out. I almost feel guilty that I am so tough about this. After 15 plus surgeries I have had to buck up, otherwise I'd lose it  everytime I had to give him over to the OR, or watch him recover from surgery, or see him scream over an IV. (WOW he hates IVs!!-that was the hugest issue this time around!) Anyways, I was just thinking about this the other day as I watched him recover. I did have a 30 second break down the following day, but I recover from those faster these days and I dont have as many. God's Peace.

So for now, we have some appointments set with ortho, ENT, and urology and hopefully he will get a nice couple of months break from the hospital.  

Heart Cath This Tuesday

Well, Tuesday is the big day. I am focusing on the fact that this is a heart cath meaning less time under anesthesia and only ONE night in hospital! Camden and I have been already talking about it. He is asking about "hurts" and IVs and if he'll be able to watch certain movies again. I tell him it will hurt a little, but daddy, mommy. and Nana will be by his side! He is so tough but I hate that he has to deal with this! Goal for Tuesday is to measure that stupid pulmonary hypertension that decided to sneak in on us again and to plug the itty bitty hold in his heart valve. After this we have ONE more planned surgery!!! Almost there! I have appointments already set up with ENT (trach hole closure) and urology (bring testes down) so we can try to set things up in JAX for both procedures at once.

As for eating! WOW! He is eating A LOT. We were laughing so hard the other night because we actually had to tell him "no more" because we thought he was going to bust. ;oP I never thought I'd have to say that to him. He'll eat a ton, then graze a bit. We did have to go to some night tube feeds because he was obviously losing weight, but that is ok....not even a worry in my mind about losing that tube because he is doing awesome in that department.

Please pray for my little man but also for my dear friend, Shannon's baby Madden. He has a mito disease and is having some breathing and seizure issues. I love this family dearly and am hurting for them as they travel this journey and they need prayers. Thank you all <3 p="p">